MCTD Resources

MCTD stands for Mixed Connective Tissue Disease.

It is an "overlap" of various autoimmune conditions. 




This page is a gathering place for all of the links and resources that have useful information about Mixed Connective Tissue Disease or that have been useful to me in the past in coming to terms with managing chronic illness. Where there is a resource page dedicated to a specific condition, I have included a link to the resource page only.

The information and resources on these pages have been recommended to me by reputable sources.  I share them here in good faith for the interest of visitors to Lupey Loops.


On this page you will find information about MCTD and related conditions, useful links and resources about related topics such as chronic illness, medication and pain, plus blogs that may interest you. I can certainly relate to many of the opinions expressed in these blogs when it comes to living with a chronic autoimmune condition.

If you have any other useful links to suggest, please contact me at jodiebodiecrochets@gmail.com.




About MCTD



Related Conditions


Addison's Disease (Hypoadrenalism)


Arthritis


Lupus (SLE)


Raynaud's Phenomenon


Scleroderma


Sjögren's Syndrome


Vasculitis



Support


I know of few support groups that support sufferers of MCTD specifically.
Support can usually be found through organisations that support sufferers of lupus and scleroderma.
These groups are listed on my other resource pages on Lupey Loops:




Useful Links & Resources


  • Australian Rheumatology Association: http://www.rheumatology.org.au/
  • Australiasian Cochrane Centre, Monash University: http://acc.cochrane.org/
  • Autoimmune Resource & Research Centre (ARRC): http://www.autoimmune.org.au/
  • National Institute of Arthritis and Musculoskeletal and Skin Diseases: http://www.niams.nih.gov/
  • National Prescribing Service Limited, PO Box 1147, Strawberry Hills NSW 2012, Australia; "an independent, non-profit organisation for 'Quality Use of Medicines' funded by the Australian Government Department of Health and Ageing, provides practical tools and information about medicines, health conditions and medical tests": www.nps.org.au
  • Orphanet, "The portal for rare diseases and orphan drugs" offers information in French, English, Spanish, German, Italian, Portuguese and Dutch. "Orphanet's aim is to help improve the diagnosis, care and treatment of patients with rare diseases."
    A European consortium of around 40 countries, funded by Inserm (the French National Institute of Health and Medical Research), the French Directorate General for Health, and the European Commission:
    http://www.orpha.net/consor/cgi-bin/Education_AboutOrphanet.php?lng=EN


Diagnostics




Living with Chronic Illness


Medication



Pain



Blogs 


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