tag:blogger.com,1999:blog-703986833050265474.post7442881077574641607..comments2024-03-22T07:18:18.281+10:30Comments on Lupey Loops: Access All Areas: Stella YoungJodiebodiehttp://www.blogger.com/profile/11377052537742885631noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-703986833050265474.post-70042512543685268762015-01-20T22:34:06.590+10:302015-01-20T22:34:06.590+10:30I don't think it is fair to compare mobility, ...I don't think it is fair to compare mobility, ability or disability. Each of us has our own challenges. I understand the control issues and that is an entire discussion subject of its own in relation to disability and chronic illness. I go from being able to push myself in my manual wheelchair (thank goodness I had good muscle mass in my arms to begin with after lost of lifting in my former life) but when the fatigue hits I can go right back to being a rag doll and it hits one like a brick. Crazy! I can't handle sudden stops, bumps, crashes or loud noises either - hypoadrenalism means these sorts of shocks can affect me badly. I am sure it is similar with cfs. Chronic fatigue is the most disabling of all my symptoms. I can work through pain and I can deal with limited mobility but that mind-numbing fog and weakness of fatigue just kills me. You say you are not strong and independent - maybe not in a physical sense but you definitely are in an intellectual sense. Jodiebodiehttps://www.blogger.com/profile/11377052537742885631noreply@blogger.comtag:blogger.com,1999:blog-703986833050265474.post-66535043898350198722015-01-20T22:00:48.355+10:302015-01-20T22:00:48.355+10:30Hi Jodie!
It sounds like I have a bit more mobil...Hi Jodie! <br /><br />It sounds like I have a bit more mobility and a bit less fatigue than you do (or maybe you just manage yours better and don't have the big dips and crashes :P ). I guess I'm lucky that I'm a complete homebody, so most days I don't leave the house, or I only go as far as the street for someone to collect me, or to the shops which are underneath our building and accessible by lift. Except for not going to work every day, this life is not tooooo far out of my comfort zone.<br /><br />My irks with the wheelchair are twofold. Firstly it is a loss of control. I don't have an electric wheelchair, just a manual one, and so someone pushes me around and decides which direction I go and where I look. I also get no joy from adrenalin rushes so the occasional sudden halt from bumping an unexpected obstacle or pothole, or feeling like I'm going to tip over, freaks me out rather than being able to pretend it's a roller coaster or something. I'm a merry-go-round kind of girl! Secondly, it's a real physical manifestation that I'm not strong and independent, and I dislike that feeling very much. I guess that's a control thing too, but at home I can sort of pretend that everything is fine and I am just lazy. <br /><br />You have the right website for Voiceworks! They only do print copies of their magazine by subscription, it's not online anywhere sadly. Matthew owns the copyright for the article though (lawyer Mich checked the contract before republishing!). <br /><br />Hugs,<br />Mich :)Michellehttps://www.blogger.com/profile/12910287804024257064noreply@blogger.comtag:blogger.com,1999:blog-703986833050265474.post-63643551184415682702015-01-20T20:06:26.046+10:302015-01-20T20:06:26.046+10:30Dear Michelle,
Thank you for chasing up your frie...Dear Michelle,<br /><br />Thank you for chasing up your friend's article called "The Ups and Downs of Ramps and Stairs" by Matthew Dunn and for republishing it on Crochet Between Worlds:<br />http://crochetbetweentwoworlds.blogspot.com.au/2015/01/the-ups-and-downs-of-ramps-and-stairs.html<br />It is sensitively written yet still highlights the basic access problems in our built environs.<br />I hope that everybody reads it, both those with disability and those without, and that they think carefully about the issues raised as we can all play a part in effecting change.<br /><br />I will put a link in the reference list of this blog article because I don't know how to put active links in a comment window. Thank you also for such a kind mention to Lupey Loops as well. <br /><br />Hugs, Jodie xxx<br /><br />Jodiebodiehttps://www.blogger.com/profile/11377052537742885631noreply@blogger.comtag:blogger.com,1999:blog-703986833050265474.post-40917613258142263992015-01-19T14:54:33.163+10:302015-01-19T14:54:33.163+10:30It is nice to meet another wheelchair user and you...It is nice to meet another wheelchair user and you are lucky that you only need it irregularly so that you can better maintain mobility and fitness in between. <br /><br />I use my chair daily: for outings that involve long distances, lengthy durations, extra exertion, outdoors in the weather etc. as all these things affect me. <br /><br />I have a small 'window' of energy in the mornings but by mid-late afternoon or evening, depending on the demands of the day, I usually collapse into my chair (or bed). I also use a 'wheelie walker' (I think the official term is 'rollater'?) for quick visits or short distances or a 'traymobile' around the house.<br /><br />Luckily, as long as I am not too fatigued, I have some mobility but I have to ration my energy. <br /><br />Why do you dislike your chair? Please don't misunderstand my question, I mean, no one wakes up in the morning and says "one day I want to be a wheelchair user" so I don't expect anyone to be pleased about it but I am interested to know which aspects you particularly dislike.<br /><br />My chair was a revelation - my ticket out of the house - allowing me to reclaim a level of freedom and independence from my stupid illness. It gave me some life back.<br /><br />I have never heard of Voiceworks before - http://www.voiceworksmag.com.au/ - is this the one? It would be great if we could find it on a link somewhere. I suppose it depends on who owns the copyright - your friend or the magazine. I am keen to read the article now. I am interested to know what the author's perceptions were before and after the Melbourne adventure.<br /><br />May this reply find you on a happy, wheelchair-free day! Hugs!Jodiebodiehttps://www.blogger.com/profile/11377052537742885631noreply@blogger.comtag:blogger.com,1999:blog-703986833050265474.post-58425198836425375262015-01-18T14:05:24.668+10:302015-01-18T14:05:24.668+10:30I am only an irregular wheelchair user - for shopp...I am only an irregular wheelchair user - for shopping trips, our annual gallivant to Melbourne etc - I dislike it, and only use it when I really need to save all my energy for other things and not spend it on boring things like walking. <br /><br />The article was published in Voiceworks magazine, not entirely sure which issue. I have a word copy of the submitted article which I can email to you, if you like? <br /><br />I'm waiting to hear back if he will let me republish it somewhere on the web as well.Michellehttps://www.blogger.com/profile/12910287804024257064noreply@blogger.comtag:blogger.com,1999:blog-703986833050265474.post-91503299203704899692015-01-13T16:46:04.559+10:302015-01-13T16:46:04.559+10:30That's the problem - not everybody thinks the ...That's the problem - not everybody thinks the same way. The organiser was thinking of a small item that is in a safe place, a very subjective stipulation.That wasn't listed on their event page though and I cannot really think of a safe place for yarn anywhere on or near any access ramp. The organisers need to realise that the term 'yarnbomb' has connotations of completely covering an item, hence the term 'bomb' (to look like yarn has exploded everywhere!). If you invite people to yarnbomb something, it is going to get covered by enthusiastic crafters! <br />By discussing these issues amongst our crochet and knitting friends, we can raise awareness and prevent access problems caused by yarn.<br />What sorts of yarnbombs have there been in your area Gillian, if any? Have you or your friends ever contemplated or participated in a yarn bomb? Jodiebodiehttps://www.blogger.com/profile/11377052537742885631noreply@blogger.comtag:blogger.com,1999:blog-703986833050265474.post-1474368822415206692015-01-13T02:50:00.134+10:302015-01-13T02:50:00.134+10:30Some people just don't seem to think before th...Some people just don't seem to think before they do something like this yarnbombing.Gillianhttps://www.blogger.com/profile/13234219836891799676noreply@blogger.comtag:blogger.com,1999:blog-703986833050265474.post-13704658404481204952015-01-11T21:44:09.266+10:302015-01-11T21:44:09.266+10:30Stella Young's articles get right to the point...Stella Young's articles get right to the point and she can say it so efficiently and cut right through the nonsense. The list of important access issues that people don't think about is quite long. I do hope that the list will get shorter as awareness builds.<br />Are you aware of any disability activist movements in Germany?<br />I hope this message finds you well. :-)Jodiebodiehttps://www.blogger.com/profile/11377052537742885631noreply@blogger.comtag:blogger.com,1999:blog-703986833050265474.post-87705639329984277202015-01-11T21:22:11.283+10:302015-01-11T21:22:11.283+10:30Hi Michelle,
I did not know Stella personally eit...Hi Michelle,<br /><br />I did not know Stella personally either. I remember first seeing her on Channel 44 (community tv here, but I think it was Channel 31 in Melbourne perhaps?) and she had the star quality from the very first moment. I remember feeling at the time "It's about time these issues were aired!"<br /><br />I did not realise that you were a wheelchair user as well. I would be very interested to read your friend's article. Can you remember what it was called and where it was published? <br /><br />The last time I was in Melbourne, it was for a conference. I was able-bodied and assisting two friends who were wheelchair users and that was quite an adventure. Now the tables have turned! <br /><br />I do hope your friend wouldn't mind sharing his article as it would be a good discussion point.<br />Thanks for your contribution, Michelle and I hope you are well. :-)Jodiebodiehttps://www.blogger.com/profile/11377052537742885631noreply@blogger.comtag:blogger.com,1999:blog-703986833050265474.post-191463736059172932015-01-11T21:11:19.673+10:302015-01-11T21:11:19.673+10:30I don't know whether Stella Young's name i...I don't know whether Stella Young's name is familiar to Belgians, but I hope you will have a look at her TEDx Sydney talk to get an idea of what she was about. (about to do a world tour!) So sad.Jodiebodiehttps://www.blogger.com/profile/11377052537742885631noreply@blogger.comtag:blogger.com,1999:blog-703986833050265474.post-63261192975182048902015-01-09T23:51:43.097+10:302015-01-09T23:51:43.097+10:30I was very sad to hear about the death of Stella Y...I was very sad to hear about the death of Stella Young. Your article highlights many important things most people don't think about/don't consider. <br /><br />Take care<br />AnneAnnehttps://www.blogger.com/profile/04245498764155066221noreply@blogger.comtag:blogger.com,1999:blog-703986833050265474.post-86567518915183199662015-01-09T22:46:06.959+10:302015-01-09T22:46:06.959+10:30Hear hear! I did not know Stella personally but kn...Hear hear! I did not know Stella personally but know a number of people who do - she touched a lot of peoples' lives with her disability activism and her refusal to "play nice". A fitting tribute, and thank you for calling out the impracticality of the proposed tribute! <br /><br />A very good friend of mine wrote a great article about his experiences the first time he pushed me around Melbourne in a wheelchair. The experience really opened his eyes to how disability-unfriendly our public spaces really are. I will see if I can track down an online copy for you! Michellehttps://www.blogger.com/profile/12910287804024257064noreply@blogger.comtag:blogger.com,1999:blog-703986833050265474.post-11626535554653061832015-01-09T09:11:26.784+10:302015-01-09T09:11:26.784+10:30Hi Jodie!
Great post, thanks for sharing!
Ingrid x...Hi Jodie!<br />Great post, thanks for sharing!<br />Ingrid xx<br />http://myfunkycrochet.blogspot.beIngrid K.https://www.blogger.com/profile/10141647083619348121noreply@blogger.com